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WSW Health: Patient Advocacy Spinal Muscular Atrophy (SMA) is the leading genetic killer of infants, but just a few short years ago, the federal government was doing virtually no research on the disease.
WSW provides parents of children diagnosed with SMA with a full time presence in the halls of Congress. WSW launched a public awareness effort on SMA including full page ADs that appeared in ROLL CALL, National Journal and The Hill. WSW also helped form a coalition of affected families, the SMA Coalition, to raise awareness about SMA on Capitol Hill and at the National Institutes of Health (NIH) to encourage the federal government to join the fight for a treatment and cure for children suffering from SMA.
 WSW understands that nothing is more important or powerful than the voice of patients and their families. The SMA Coalition has successfully worked to advocate for increased resources on SMA, including the launch of an innovative translational research program at the NIH known as The SMA Project, which is focused on developing actual treatments for those suffering from SMA and other diseases. Members of the SMA Coalition have testified on Capitol Hill on SMA specifically, on pediatric diseases, and the need for increased NIH funding. PLEASE NOTE: If you or a member of your family has SMA and you need specific patient information or advice, please contact one of our many coalition members. You can find their contact information on our SMA Coalition website. About the Client The Spinal Muscular Atrophy Coalition is comprised of nonprofits from across the country which work together to raise awareness and advocate for progress towards a treatment and cure for the leading genetic killer of infants and toddlers – SMA Team Members |
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